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Title

Exploring the Challenges and Opportunities of eHealth Tools for Patients with Sickle Cell Disease

Authors
Issom, David-Zacharie
Koch, Sabine
Published in Studies in Health Technology and Informatics. 2015, vol. 216, p. 898
Abstract Sickle cell disease (SCD) is the most prevalent inherited blood disorder in the world. The symptoms decrease the quality of life of patients and can cause premature death. Self-help solutions for chronic patients are rising and increase the quality of life of patients. We are interested to identify the usefulness of eHealth tools for patients with SCD. We did a literature review to identify the main problems faced by patients and the existing eHealth solutions. The results show a low number of studies in the field but a multi-disciplinary interest. Positive health benefits for patients are reported as well as the need for more research. Patients and caregivers lack of education about the disease, healthy behaviors are unknown and clinical best practices underused. E-health tools can offer an appropriate support for the self-management of SCD by improving the quality of life of patients, by enhancing patient health literacy and by allowing clinicians to make better decisions.
Identifiers
PMID: 26262200
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Article (Published version) (84 Kb) - document accessible for UNIGE members only Limited access to UNIGE
Structures
Research group Interfaces Homme-machine en milieu clinique (610)
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(ISO format)
ISSOM, David-Zacharie et al. Exploring the Challenges and Opportunities of eHealth Tools for Patients with Sickle Cell Disease. In: Studies in Health Technology and Informatics, 2015, vol. 216, p. 898. https://archive-ouverte.unige.ch/unige:77884

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Deposited on : 2015-11-30

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