Exploring the Challenges and Opportunities of eHealth Tools for Patients with Sickle Cell Disease

Article Article scientifique Article Exploring the Challenges and Opportunities of eHealth Tools for Patients with Sickle Cell Disease eng 2015 author Issom David-Zacharie author Zosso Alexandra 659870 author Ehrler Frédéric 509959 author Wipfli Rolf 583842 author Lovis Christian 0000-0002-2681-8076 29016 author Koch Sabine 898 10.3233/978-1-61499-564-7-898 26262200 0926-9630 http://ebooks.iospress.nl/publication/40358 Sickle cell disease (SCD) is the most prevalent inherited blood disorder in the world. The symptoms decrease the quality of life of patients and can cause premature death. Self-help solutions for chronic patients are rising and increase the quality of life of patients. We are interested to identify the usefulness of eHealth tools for patients with SCD. We did a literature review to identify the main problems faced by patients and the existing eHealth solutions. The results show a low number of studies in the field but a multi-disciplinary interest. Positive health benefits for patients are reported as well as the need for more research. Patients and caregivers lack of education about the disease, healthy behaviors are unknown and clinical best practices underused. E-health tools can offer an appropriate support for the self-management of SCD by improving the quality of life of patients, by enhancing patient health literacy and by allowing clinicians to make better decisions. Dewey 616.0757 62 Département de radiologie et informatique médicale 227 false 344 Interfaces Homme-machine en milieu clinique 610 Studies in health technology and informatics 216 160b58e6-428e-48a1-83e5-7f2a34d3919c Article (Published version) Public SHTI216-0898.pdf 85973 application/pdf CC BY-NC openAccess Faculté de médecine / Section de médecine clinique / Département de radiologie et informatique médicale

Title	Published in	Access level	OA Policy	Year	Views	Downloads

Exploring the Challenges and Opportunities of eHealth Tools for Patients with Sickle Cell Disease	Studies in health technology and informatics			2015	814	108

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Zosso, Alexandra