Early advance care planning in amyotrophic lateral sclerosis patients: results of a systematic intervention by a palliative care team in a multidisciplinary management programme – a 4-year cohort study

Sukockiené, Eglè; Iancu Ferfoglia, Ruxandra; Boegli, Monique; Lefranc Barranco, Catherine; Truffert, André; Heritier Barras, Anne-Chantal; Genton Graf, Laurence; Leuchter, Igor; Adler, Dan Elie; Janssens, Jean-Paul; Escher, Monica

doi:10.4414/smw.2021.20484

Scientific article

Open access

English

Early advance care planning in amyotrophic lateral sclerosis patients: results of a systematic intervention by a palliative care team in a multidisciplinary management programme – a 4-year cohort study

ContributorsSukockiené, Eglè; Iancu Ferfoglia, Ruxandra; Boegli, Monique; Lefranc Barranco, Catherine; Truffert, André; Heritier Barras, Anne-Chantal; Genton Graf, Laurence

; Leuchter, Igor; Adler, Dan Elie; Janssens, Jean-Paul; Escher, Monica

Published inSwiss Medical Weekly, vol. 151, w20484

Publication date2021

Abstract

INTRODUCTION: Although recommended, the implementation of early advance care planning is suboptimal in amyotrophic lateral sclerosis (ALS) patients. Barriers to advance care planning include healthcare professionals' and patients' reluctance, and uncertainty about the right time to initiate a discussion. AIM OF THE STUDY: To determine how often advance care planning was initiated, and the content of the discussion in a first routine palliative care consultation integrated within a multidisciplinary management programme.

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Citation (ISO format)

SUKOCKIENÉ, Eglè et al. Early advance care planning in amyotrophic lateral sclerosis patients: results of a systematic intervention by a palliative care team in a multidisciplinary management programme – a 4-year cohort study. In: Swiss Medical Weekly, 2021, vol. 151, p. w20484. doi: 10.4414/smw.2021.20484