Early advance care planning in amyotrophic lateral sclerosis patients: results of a systematic intervention by a palliative care team in a multidisciplinary management programme

Article Article scientifique Article Early advance care planning in amyotrophic lateral sclerosis patients: results of a systematic intervention by a palliative care team in a multidisciplinary management programme – a 4-year cohort study eng 2021 author Sukockiené Eglè author Iancu Ferfoglia Ruxandra 586638 author Boegli Monique author Lefranc Barranco Catherine 549830 author Truffert André 108064 author Heritier Barras Anne-Chantal 27107 author Genton Graf Laurence 0000-0002-0037-5203 514243 author Leuchter Igor 88868 author Adler Dan Elie 105451 author Janssens Jean-Paul 30742 author Escher Monica 33075 w20484 10.4414/smw.2021.20484 33872379 1424-7860 https://doi.emh.ch/smw.2021.20484 INTRODUCTION: Although recommended, the implementation of early advance care planning is suboptimal in amyotrophic lateral sclerosis (ALS) patients. Barriers to advance care planning include healthcare professionals' and patients' reluctance, and uncertainty about the right time to initiate a discussion. AIM OF THE STUDY: To determine how often advance care planning was initiated, and the content of the discussion in a first routine palliative care consultation integrated within a multidisciplinary management programme. Dewey 610/370 Dewey 616.8 Dewey 617 Dewey 618.97 48 Unité de développement et de recherche en éducation médicale 204 61 Département des neurosciences cliniques 226 63 Département d'anesthésiologie, pharmacologie, soins intensifs et urgences 229 65 Département de réadaptation et gériatrie 22B false 436 Médecine palliative 709 1386 Nutrition et chronobiologie 1038 Swiss Medical Weekly 151 e6e89af6-9efb-4f5b-b090-97b07f81a4de Article (Published version) Public Monica_Escher_smw_2021_20484_Early_advance_care_planning_in_amyotrophic_lateral_sclerosi_patients.pdf 470379 application/pdf CC BY-NC-ND openAccess Faculté de médecine / Unité de développement et de recherche en éducation médicale Faculté de médecine / Section de médecine clinique / Département des neurosciences cliniques Faculté de médecine / Section de médecine clinique / Département d'anesthésiologie, pharmacologie, soins intensifs et urgences Faculté de médecine / Section de médecine clinique / Département de réadaptation et gériatrie

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Early advance care planning in amyotrophic lateral sclerosis patients: results of a systematic intervention by a palliative care team in a multidisciplinary management programme – a 4-year cohort study	Swiss Medical Weekly			2021	442	502

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Lefranc Barranco, Catherine