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Scientific article
English

Strategies for health data exchange for secondary, cross-institutional clinical research

Contributors

Elger, Bernice Simone; Iavindrasana, Jimison; Lo Iacono, Luigi; Muller, Henning; Roduit, Nicolas; Summers, Paul; Wright, Jessica

Published in

Computer methods and programs in biomedicine, vol. 99, no. 3, p. 230-251

Publication date

2010

Abstract

Secondary use of health data has a vital role in improving and advancing medical knowledge. While digital health records offer scope for facilitating the flow of data to secondary uses, it remains essential that steps are taken to respect wishes of the patient regarding secondary usage, and to ensure the privacy of the patient during secondary use scenarios. Consent, together with depersonalisation and its related concepts of anonymisation, pseudonymisation, and data minimisation are key methods used to provide this protection. This paper gives an overview of technical, practical, legal, and ethical aspects of secondary data use and discusses their implementation in the multi-institutional @neurIST research project.

Keywords

  • Access to Information/*ethics
  • Algorithms
  • *Biomedical Research
  • Computer Security
  • Computer Systems/ethics
  • Confidentiality/*ethics
  • Ethics, Medical
  • Humans
  • *Informed Consent
  • *Medical Records Systems, Computerized
  • Research Design

UNIGE affiliation entities

UNIGE research groups

Citation (ISO format)

ELGER, Bernice Simone et al. Strategies for health data exchange for secondary, cross-institutional clinical research. In: Computer methods and programs in biomedicine, 2010, vol. 99, n° 3, p. 230–251. doi: 10.1016/j.cmpb.2009.12.001

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Additional URL for this publication

http://ac.els-cdn.com/S0169260709003046/1-s2.0-S0169260709003046-main.pdf?_tid=a2d009111166e6c1a65cd1d0430d713b&acdnat=1335966891_a7aa08c169421e0e2b2d972e6a75a5da

Journal ISSN

0169-2607
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Creation

23/05/2012 08:45:26

First validation

23/05/2012 08:45:26

Update

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