Data accuracy, consistency and completeness of the national Swiss cystic fibrosis patient registry : Lessons from an ECFSPR data quality project
ContributorsWolf, Lara; Usemann, Jakob; Collaud, Eugénie; Derkenne, Marie-France; Fischer, Reta; Hensen, Maxime; Hitzler, Michael; Hofer, Markus; Inci, Demet; Irani, Sarosh; Jahn, Kathleen; Koutsokera, Angela; Kusche, Rachel; Kurowski, Thomas; Latzin, Philipp; Lin, Dagmar; Mioranza, Laurence; Moeller, Alexander; Mornand, Anne; Mueller-Suter, Dominik; Murer, Christian; Naehrlich, Lutz; Plojoux, Jérôme Pierre Olivier; Regamey, Nicolas; Rodriguez, Romy; Rochat, Isabelle; Sauty, Alain; Schuurmans, Macé; Semmler, Michaela; Trachsel, Daniel; Walter, Anna-Lena; Jung, Andreas
Published inJournal of cystic fibrosis, S1569-1993(23)00904-9
Publication date2023-11-22
First online date2023-11-22
Abstract
Keywords
- Cystic fibrosis
- Data quality
- Data quality audit
- Patient registries
Research groups
Citation (ISO format)
WOLF, Lara et al. Data accuracy, consistency and completeness of the national Swiss cystic fibrosis patient registry : Lessons from an ECFSPR data quality project. In: Journal of cystic fibrosis, 2023, p. S1569–1993(23)00904–9. doi: 10.1016/j.jcf.2023.08.015
Main files (1)
Article (Published version)
Identifiers
- PID : unige:174635
- DOI : 10.1016/j.jcf.2023.08.015
- PMID : 37996316
ISSN of the journal1569-1993