Master
OA Policy
English

Translation of intersex rights: from medical collaboration to human rights opposition : The intersex movement from the “Consensus statement” (2006) to 2015

DirectorsHanson, Karl
Master program titleMaster interdisciplinaire en droits de l'enfant
Defense date2020
Abstract

Around the time of the Consensus statement on the management of intersex disorders in 2006, controversies within the intersex movement materialised. These controversies mainly articulated themselves around the adoption of a new medical language, namely Disorders of Sex Development, and the endorsement of this wording by the Intersex Society of North America. A decade after that statement, and the refreshed medical guidelines, the question of intersex bodily integrity has been increasingly institutionalised within international and regional human rights mechanism. This research aims to understand the role of the Consensus statement on the management of intersex disorders in this process and more specifically, the controversies within the movement that surrounded this event. By conducting problem-centred interviews with leading voices of the movement at the time, different phenomenon could be identified. A feeling of anger resulting from the pathologisation of intersex bodies in the new standards of care, motivated the creation of an international network of intersex organisations. Strengthened from the international community and new online communication tools, a different approach to activism emerged, crystallising its claims during international intersex forums in 2011, 2012 and 2013. However, despite international recognition, it seems that the movement still faces difficulties to bring its demands forward as a result of the newly endorsed nomenclature.

Keywords
  • Intersex rights
  • Intersex movement
  • Consensus statement
Citation (ISO format)
AEGERTER, Audrey Alessandra Pascale. Translation of intersex rights: from medical collaboration to human rights opposition : The intersex movement from the “Consensus statement” (2006) to 2015. Master, 2020.
Main files (1)
Master thesis
accessLevelPublic
Identifiers
  • PID : unige:156906
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