Translation of intersex rights: from medical collaboration to human rights opposition : The intersex movement from the “Consensus statement” (2006) to 2015

Diplôme Master Translation of intersex rights: from medical collaboration to human rights opposition : The intersex movement from the “Consensus statement” (2006) to 2015 eng 2020 author Aegerter Audrey Alessandra Pascale 921102 director Hanson Karl 829123 Around the time of the Consensus statement on the management of intersex disorders in 2006, controversies within the intersex movement materialised. These controversies mainly articulated themselves around the adoption of a new medical language, namely Disorders of Sex Development, and the endorsement of this wording by the Intersex Society of North America. A decade after that statement, and the refreshed medical guidelines, the question of intersex bodily integrity has been increasingly institutionalised within international and regional human rights mechanism. This research aims to understand the role of the Consensus statement on the management of intersex disorders in this process and more specifically, the controversies within the movement that surrounded this event. By conducting problem-centred interviews with leading voices of the movement at the time, different phenomenon could be identified. A feeling of anger resulting from the pathologisation of intersex bodies in the new standards of care, motivated the creation of an international network of intersex organisations. Strengthened from the international community and new online communication tools, a different approach to activism emerged, crystallising its claims during international intersex forums in 2011, 2012 and 2013. However, despite international recognition, it seems that the movement still faces difficulties to bring its demands forward as a result of the newly endorsed nomenclature. Intersex rights Intersex movement Consensus statement Dewey 342.7 Master interdisciplinaire en droits de l'enfant 196 Centre interfacultaire en droits de l'enfant 0DK false bc3966d3-7606-40bd-9b74-2417b337388e Master thesis Public Aegerter_Audrey_Alessandra_Pascale_.pdf 788961 application/pdf openAccess Centres et instituts / Centre interfacultaire en droits de l'enfant

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Translation of intersex rights: from medical collaboration to human rights opposition : The intersex movement from the “Consensus statement” (2006) to 2015				2020	130	320

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Aegerter, Audrey Alessandra Pascale