Doctoral thesis
Open access

The burden of normality: a model of psychosocial adjustment after deep brain stimulation for Parkinson's disease

ContributorsBaertschi, Marc
Defense date2018-12-11

Deep brain stimulation (DBS) has become a leading surgical treatment for patients diagnosed with Parkinson's disease (PD) whose response to traditional dopaminergic medication is no longer optimal. Despite significant motor improvement, patients undergoing DBS for PD (PD-DBS) continue facing various issues impairing their quality of life (e.g., maintain of non-motor symptoms, appearance of new symptoms, difficulties to find adapted stimulation parameters). In addition to these medical reasons, psychosocial maladjustment has been recently considered a potential cause for perceived dissatisfaction after PD-DBS. Yet, no theoretical model has been proposed so far to account for the role and dynamics of psychosocial adjustment in the DBS process. This thesis attempts to apply to PD-DBS a theoretical model of psychosocial adjustment, the burden of normality (BoN), initially developed in epilepsy. Five studies are presented in this regard. The BoN is directly addressed through two studies; first, a literature review on the possible correspondences between the model and psychosocial issues after PD-DBS and; second; a retrospective and qualitative study investigating the psychosocial experience of patients treated with PD-DBS. Next, two potential issues of psychosocial adjustment after PD-DBS, namely couple satisfaction and illness representations, are investigated throughout three studies. By way of conclusion, this thesis discusses the relevance of setting up psychosocial rehabilitation programs in the clinical routine.

  • Burden of normality
  • Psychosocial adjustment
  • Parkinson's disease
  • Deep brain stimulation
  • Couple satisfaction
  • Illness representations
Citation (ISO format)
BAERTSCHI, Marc. The burden of normality: a model of psychosocial adjustment after deep brain stimulation for Parkinson’s disease. 2018. doi: 10.13097/archive-ouverte/unige:112573
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Creation12/25/2018 9:31:00 AM
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