Enhancing patients' autonomy by involving them in research ethics committees

Rakic, Milenko; Dittrich, Tolga; Elger, Bernice Simone; Shaw, David

doi:10.1093/intqhc/mzx128

Scientific article

English

Enhancing patients' autonomy by involving them in research ethics committees

ContributorsRakic, Milenko; Dittrich, Tolga; Elger, Bernice Simone; Shaw, David

Published inInternational Journal for Quality in Health Care, vol. 29, no. 7, p. 896-900

Publication date2017

Abstract

Although clinical trial participants are the most affected by research ethics committee's decisions, they are not formally represented on Swiss committees. We aimed to find out what patients think about the idea of being members of such committees.

Keywords

Adult
Aged
Aged
80 and over
Attitude
Decision Making
Diabetes Mellitus
Ethics Committees
Research/organization & administration
Female
Gout
Humans
Male
Middle Aged
Patient Participation/psychology
Personal Autonomy
Qualitative Research
Switzerland

Affiliation entities

Faculté de médecine / Section de médecine clinique / Département de santé et médecine communautaires / Institut de médecine légale

Research groups

Le Secret médical (676)

Citation (ISO format)

RAKIC, Milenko et al. Enhancing patients” autonomy by involving them in research ethics committees. In: International Journal for Quality in Health Care, 2017, vol. 29, n° 7, p. 896–900. doi: 10.1093/intqhc/mzx128

Article (Published version)

Identifiers

PID : unige:111179
DOI : 10.1093/intqhc/mzx128
PMID : 29077835

Journal ISSN1353-4505

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First validation20/09/2018 13:33:00

Update15/03/2023 13:52:41

Status update15/03/2023 13:52:40

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Enhancing patients' autonomy by involving them in research ethics committees

Although clinical trial participants are the most affected by research ethics committee's decisions, they are not formally represented on Swiss committees. We aimed to find out what patients think about the idea of being members of such committees.

Technical informations