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Title

Data quality in rare cancers registration: the report of the RARECARE data quality study

Authors
Trama, Annalisa
Marcos-Gragera, Rafael
Sánchez Pérez, Maria Josè
van der Zwan, Jan Maarten
Ardanaz, Eva
Melchor, Juan Manuel
Martinez, Carmen
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Published in Tumori. 2016, p. 0
Abstract Rare cancers represent 22% of all tumors in Europe; however, the quality of the data of rare cancers may not be as good as the quality of data for common cancer. The project surveillance of rare cancers in Europe (RARECARE) had, among others, the objective of assessing rare cancer data quality in population-based cancer registries (CRs). Eight rare cancers were considered: mesothelioma, liver angiosarcoma, sarcomas, tumors of oral cavity, CNS tumors, germ cell tumors, leukemia, and malignant digestive endocrine tumors.
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PMID: 27716878
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Research group Groupe Bouchardy Magnin Christine (Registre genevois des tumeurs) (532)
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TRAMA, Annalisa et al. Data quality in rare cancers registration: the report of the RARECARE data quality study. In: Tumori, 2016. https://archive-ouverte.unige.ch/unige:89125

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Deposited on : 2016-11-18

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