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Title

Information needs in parents of long-term childhood cancer survivors

Authors
Vetsch, Janine
Rueegg, Corina S
Gianinazzi, Micòl E
Bergsträsser, Eva
von der Weid, Nicolas X
Michel, Gisela
CollaborationWith : Ansari Djaberi, Marc Georges
Published in Pediatric Blood and Cancer. 2015, vol. 62, no. 5, p. 859-866
Abstract Parents' knowledge about cancer, treatment, potential late effects and necessary follow-up is important to reassure themselves and motivate their child to participate in regular follow-up. We aimed to describe (i) parents' perception of information received during and after treatment; (ii) parents' current needs for information today, and to investigate; and (iii) associations between information needs and socio-demographic and clinical characteristics.
Keywords AdolescentAdultChildChild, PreschoolDecision MakingDelivery of Health CareFemaleFollow-Up StudiesHumansInfantInfant, NewbornInformation Services/standards/utilizationMaleMiddle AgedNeeds AssessmentNeoplasms/prevention & controlParents/education/psychologyPrognosisQuality of LifeRegistriesSurvivors/psychology
Identifiers
PMID: 25663499
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Article (Published version) (325 Kb) - document accessible for UNIGE members only Limited access to UNIGE
Structures
Research group Plateforme d'oncologie et d'hématologie pédiatrique (907)
Citation
(ISO format)
VETSCH, Janine et al. Information needs in parents of long-term childhood cancer survivors. In: Pediatric Blood and Cancer, 2015, vol. 62, n° 5, p. 859-866. https://archive-ouverte.unige.ch/unige:76218

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Deposited on : 2015-10-16

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