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Information needs in parents of long-term childhood cancer survivors

Vetsch, Janine
Rueegg, Corina S
Gianinazzi, Micòl E
Bergsträsser, Eva
von der Weid, Nicolas X
Michel, Gisela
CollaborationWith : Ansari Djaberi, Marc Georges
Published in Pediatric Blood and Cancer. 2015, vol. 62, no. 5, p. 859-866
Abstract Parents' knowledge about cancer, treatment, potential late effects and necessary follow-up is important to reassure themselves and motivate their child to participate in regular follow-up. We aimed to describe (i) parents' perception of information received during and after treatment; (ii) parents' current needs for information today, and to investigate; and (iii) associations between information needs and socio-demographic and clinical characteristics.
Keywords AdolescentAdultChildChild, PreschoolDecision MakingDelivery of Health CareFemaleFollow-Up StudiesHumansInfantInfant, NewbornInformation Services/standards/utilizationMaleMiddle AgedNeeds AssessmentNeoplasms/prevention & controlParents/education/psychologyPrognosisQuality of LifeRegistriesSurvivors/psychology
PMID: 25663499
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Research group Plateforme d'oncologie et d'hématologie pédiatrique (907)
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VETSCH, Janine et al. Information needs in parents of long-term childhood cancer survivors. In: Pediatric Blood and Cancer, 2015, vol. 62, n° 5, p. 859-866. https://archive-ouverte.unige.ch/unige:76218

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Deposited on : 2015-10-16

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