Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires
Published inOrphanet journal of rare diseases, vol. 10, no. 1, 59
Publication date2015
Abstract
Keywords
- Rare disease, Phenylketonuria, Questionnaires, Health-related quality of life, Children, Adolescents, Parents, Cross-cultural adaptation, Simultaneous development, Psychometric validation
Affiliation
Citation (ISO format)
REGNAULT, Antoine et al. Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients” and parents” quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires. In: Orphanet journal of rare diseases, 2015, vol. 10, n° 1, p. 59. doi: 10.1186/s13023-015-0261-6
Main files (1)
Article (Published version)
Identifiers
- PID : unige:56133
- DOI : 10.1186/s13023-015-0261-6
- PMID : 25958326
ISSN of the journal1750-1172