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Scientific Article
unige:55172 
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Information provision and information needs in adult survivors of childhood cancer |
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| Authors | ||
| Collaboration | With : Ansari Djaberi, Marc Georges | |
| Published in | Pediatric Blood and Cancer. 2014, vol. 61, no. 2, p. 312-8 | |
| Abstract | Knowledge about their past medical history is central for childhood cancer survivors to ensure informed decisions in their health management. Knowledge about information provision and information needs in this population is still scarce. We thus aimed to assess: (1) the information survivors reported to have received on disease, treatment, follow-up, and late effects; (2) their information needs in these four domains and the format in which they would like it provided; (3) the association with psychological distress and quality of life (QoL). | |
| Keywords | Adolescent — Adult — Case-Control Studies — Child — Consumer Health Information — Data Collection — Delivery of Health Care — Female — Follow-Up Studies — Health Knowledge, Attitudes, Practice — Humans — Internet/utilization — Male — Medical Informatics — Needs Assessment — Neoplasm Recurrence, Local/psychology/therapy — Neoplasms/psychology/therapy — Patient Education as Topic — Prognosis — Quality of Life — Questionnaires — Registries — Survival Rate — Survivors/psychology — Young Adult | |
| Identifiers | DOI: 10.1002/pbc.24762 PMID: 24019260 | |
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| Structures | ||
| Research group | Plateforme d'oncologie et d'hématologie pédiatrique (907) | |
| Citation (ISO format) | GIANINAZZI, Micòl E et al. Information provision and information needs in adult survivors of childhood cancer. In: Pediatric Blood and Cancer, 2014, vol. 61, n° 2, p. 312-8. https://archive-ouverte.unige.ch/unige:55172 |
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