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Information provision and information needs in adult survivors of childhood cancer

Gianinazzi, Micòl E
Essig, Stefan
Rueegg, Corina S
von der Weid, Nicolas
Brazzola, Pierluigi
Kuehni, Claudia E
Michel, Gisela
CollaborationWith : Ansari Djaberi, Marc Georges
Published in Pediatric blood & cancer. 2014, vol. 61, no. 2, p. 312-8
Abstract Knowledge about their past medical history is central for childhood cancer survivors to ensure informed decisions in their health management. Knowledge about information provision and information needs in this population is still scarce. We thus aimed to assess: (1) the information survivors reported to have received on disease, treatment, follow-up, and late effects; (2) their information needs in these four domains and the format in which they would like it provided; (3) the association with psychological distress and quality of life (QoL).
Keywords AdolescentAdultCase-Control StudiesChildConsumer Health InformationData CollectionDelivery of Health CareFemaleFollow-Up StudiesHealth Knowledge, Attitudes, PracticeHumansInternet/utilizationMaleMedical InformaticsNeeds AssessmentNeoplasm Recurrence, Local/psychology/therapyNeoplasms/psychology/therapyPatient Education as TopicPrognosisQuality of LifeQuestionnairesRegistriesSurvival RateSurvivors/psychologyYoung Adult
PMID: 24019260
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Research group Oncologie et hématologie pédiatrique (907)
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GIANINAZZI, Micòl E et al. Information provision and information needs in adult survivors of childhood cancer. In: Pediatric blood & cancer, 2014, vol. 61, n° 2, p. 312-8. doi: 10.1002/pbc.24762 https://archive-ouverte.unige.ch/unige:55172

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Deposited on : 2015-04-07

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