Scientific article
English

Information provision and information needs in adult survivors of childhood cancer

Published inPediatric blood & cancer, vol. 61, no. 2, p. 312-318
Publication date2014
Abstract

Knowledge about their past medical history is central for childhood cancer survivors to ensure informed decisions in their health management. Knowledge about information provision and information needs in this population is still scarce. We thus aimed to assess: (1) the information survivors reported to have received on disease, treatment, follow-up, and late effects; (2) their information needs in these four domains and the format in which they would like it provided; (3) the association with psychological distress and quality of life (QoL).

Keywords
  • Adolescent
  • Adult
  • Case-Control Studies
  • Child
  • Consumer Health Information
  • Data Collection
  • Delivery of Health Care
  • Female
  • Follow-Up Studies
  • Health Knowledge, Attitudes, Practice
  • Humans
  • Internet/utilization
  • Male
  • Medical Informatics
  • Needs Assessment
  • Neoplasm Recurrence, Local/psychology/therapy
  • Neoplasms/psychology/therapy
  • Patient Education as Topic
  • Prognosis
  • Quality of Life
  • Questionnaires
  • Registries
  • Survival Rate
  • Survivors/psychology
  • Young Adult
Citation (ISO format)
GIANINAZZI, Micòl E et al. Information provision and information needs in adult survivors of childhood cancer. In: Pediatric blood & cancer, 2014, vol. 61, n° 2, p. 312–318. doi: 10.1002/pbc.24762
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Article (Published version)
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Identifiers
Journal ISSN1545-5009
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