The rise of neglected tropical diseases (NTDs) as a global health category has undoubtedly increased awareness of hitherto unknown health problems; an example of this is the recent incorporation of noma a severe gangrenous disease of the mouth and face, in the NTD list.

Yet, the sustained participation of those directly affectedby NTDs has not always been a central feature of global health discourses.

This commentary draws insights from a workshop which brought together representatives from advocacy, humanitarian and academic organisations working on noma and leprosy to discuss the process and political dimensions of disease framing and the challenges of overcoming neglect in global health.

Here we outline important steps that must be taken to address neglect through a more inclusive and person-centred approach