Scientific article
OA Policy
English

A novel framework for incorporating patient values and preferences in making guideline recommendations : guideline panel surveys

Published inJournal of clinical epidemiology, vol. 161, p. 164-172
Publication date2023-09
First online date2023-07-13
Abstract

Objective: Universally acknowledged standards for trustworthy guidelines include the necessity to ground recommendations in patient values and preferences. When information is limited-which is typically the case-guideline panels often find it difficult to explicitly integrate patient values and preferences into their recommendations. Our objective was to develop and evaluate a framework for systematically navigating guideline panels in incorporating patient values and preferences in making recommendations.

Study design and setting: In the context of developing a guideline for colorectal cancer screening, we generated an initial framework for creating panel surveys to elicit guideline panelists' views of patient values and preferences and to inform panel discussions on recommendations. With further applications in guidelines of diverse topic areas, we dynamically refined the framework through iterative discussions and consensus.

Results: The finial framework consists of five steps for creating and implementing panel surveys. The surveys can serve three objectives following from the quantitative information regarding patient values and preferences that guideline panels usually require. An accompanying video provides detailed instructions of the survey.

Conclusion: The framework for creating and implementing panel surveys offers explicit guidance for guideline panels considering transparently and systematically incorporating patient values and preferences into guideline recommendations.

Keywords
  • Framework
  • Guideline
  • Methods
  • Patient preferences
  • Survey
  • Threshold
  • Humans
  • Surveys and Questionnaires
  • Consensus
  • Colorectal Neoplasms / diagnosis
  • Colorectal Neoplasms / therapy
Citation (ISO format)
ZENG, Linan et al. A novel framework for incorporating patient values and preferences in making guideline recommendations : guideline panel surveys. In: Journal of clinical epidemiology, 2023, vol. 161, p. 164–172. doi: 10.1016/j.jclinepi.2023.07.003
Main files (1)
Article (Published version)
Identifiers
Journal ISSN0895-4356
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205downloads

Technical informations

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