Scientific article
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English

Outcomes measured in studies assessing health systems interventions for type 1 diabetes management : A scoping review

Published inDiabetic medicine, vol. 41, no. 2, e15223
Publication date2024-02
First online date2023-09-18
Abstract

Aims : Describe the outcomes reported in research on health systems interventions for type 1 diabetes management in comparison to the outcomes proposed by a core outcome set (COS) for this condition, an essential list of outcomes that studies should measure.

Methods : Systematic search of studies published between 2010 and 2021 reporting health systems interventions directed to improve the management of type 1 diabetes using PubMed, EMBASE and CENTRAL. Information on the outcomes was extracted and classified according to a COS: self‐management, level of clinical engagement, perceived control over diabetes, diabetes‐related quality of life, diabetes burden, diabetes ketoacidosis, severe hypoglycemia, and glycated hemoglobin (HbA1C).

Results : 187 studies were included. Most of the studies included either children ( n = 82/187) or adults ( n = 82/187) living with type 1 diabetes. The most common outcome measured was HbA1C ( n = 149/187), followed by self‐management ( n = 105/187). While the least measured ones were diabetes ketoacidosis ( n = 15/187), and clinical engagement ( n = 0/187). None of the studies measured all the outcomes recommended in the COS. Additionally, different tools were found to be used in measuring the same outcome.

Conclusions : This study provides a description of what researchers are measuring when assessing health systems interventions to improve type 1 diabetes management. In contrast to a COS, it was found that there is a predominance of clinical‐based outcomes over patient‐reported outcome measures.

Keywords
  • Core outcome set
  • Health systems
  • Outcomes
  • Type 1 diabetes
Citation (ISO format)
ZAFRA TANAKA, Jessica Hanae et al. Outcomes measured in studies assessing health systems interventions for type 1 diabetes management : A scoping review. In: Diabetic medicine, 2024, vol. 41, n° 2, p. e15223. doi: 10.1111/dme.15223
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Identifiers
Journal ISSN0742-3071
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Creation16/10/2024 14:54:06
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Update02/04/2025 14:16:18
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