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Scientific article
Open access
English

A National Survey Comparing Patients' and Transplant Professionals' Research Priorities in the Swiss Transplant Cohort Study

Published inTransplant international, vol. 35, 10255
Publication date2022
First online date2022-05-18
Abstract

We aimed to identify, assess, compare and map research priorities of patients and professionals in the Swiss Transplant Cohort Study. The project followed 3 steps. 1) Focus group interviews identified patients' (n = 22) research priorities. 2) A nationwide survey assessed and compared the priorities in 292 patients and 175 professionals. 3) Priorities were mapped to the 4 levels of Bronfenbrenner's ecological framework. The 13 research priorities (financial pressure, medication taking, continuity of care, emotional well-being, return to work, trustful relationships, person-centredness, organization of care, exercise and physical fitness, graft functioning, pregnancy, peer contact and public knowledge of transplantation), addressed all framework levels: patient (n = 7), micro (n = 3), meso (n = 2), and macro (n = 1). Comparing each group's top 10 priorities revealed that continuity of care received highest importance rating from both (92.2% patients, 92.5% professionals), with 3 more agreements between the groups. Otherwise, perspectives were more diverse than congruent: Patients emphasized patient level priorities (emotional well-being, graft functioning, return to work), professionals those on the meso level (continuity of care, organization of care). Patients' research priorities highlighted a need to expand research to the micro, meso and macro level. Discrepancies should be recognized to avoid understudying topics that are more important to professionals than to patients.

eng
Keywords
  • Organ transplantation
  • Patient involvement
  • Qualitative methods
  • Registry-based study
  • Research priorities
  • Cohort Studies
  • Female
  • Focus Groups
  • Humans
  • Pregnancy
  • Qualitative Research
  • Research
  • Surveys and Questionnaires
  • Switzerland
Citation (ISO format)
BECKMANN, Sonja et al. A National Survey Comparing Patients” and Transplant Professionals” Research Priorities in the Swiss Transplant Cohort Study. In: Transplant international, 2022, vol. 35, p. 10255. doi: 10.3389/ti.2022.10255
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Identifiers
ISSN of the journal0934-0874
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