Scientific article
Open access

Post-traumatic stress in parents of long-term childhood cancer survivors compared to parents of the Swiss general population

Publication date2020-10
First online date2020-07-28

Background: We describe post-traumatic stress symptoms (PTSS) and post-traumatic stress disorder (PTSD) in parents of long-term childhood cancer survivors (CCS-parents) and compare them to parents of similar-aged children (comparison-parents) of the Swiss general population (SGP). We compare type of reported stressful event, prevalence of PTSS and PTSD, and psychosocial and cancer-related characteristics associated with PTSS. We further describe the respective normative data for the SGP.

Methods: We conducted a nationwide cross-sectional questionnaire survey in a population-based sample of long-term CCS-parents (survivors aged ≤16 years at diagnosis, ≥20 years at study, >5 years post-diagnosis) and in the SGP. Using the Impact of Event Scale-Revised, we measured PTSS regarding the most stressful event experienced, and computed probable cases of PTSD.

Results: Participants included 663 CCS-parents (39.4% fathers) and 1035 individuals of the SGP (40.0% male), of which we identified 391 comparison-parents (41.2% fathers). Illness was most often indicated as stressful event (CCS-parents: 49.5%, comparison-parents: 27.6%, SGP: 25.3%). Prevalence of PTSS and PTSD (CCS-parents: 4.8%, comparison-parents: 6.7%, SGP: 5.6%) did not significantly differ. Lower education was associated with higher intrusion, avoidance, and hyperarousal in all samples (all P ≤ .003). Parents of children with a chronic illness reported higher intrusion (all P ≤ .004). We found no associations with cancer-related characteristics.

Conclusions: No increased risk for PTSS or PTSD was found among CCS-parents. Individuals with lower education and those with a chronically ill child might benefit from additional support to help manage and resolve the stress symptoms in the long term.

  • Childhood cancer
  • Cohort
  • Parent
  • Population norm
  • Post-traumatic stress disorder
  • Post-traumatic stress symptoms
  • Survivor
Citation (ISO format)
BAENZIGER, Julia et al. Post-traumatic stress in parents of long-term childhood cancer survivors compared to parents of the Swiss general population. In: Journal of psychosocial oncology research and practice, 2020, vol. 2, n° 3, p. e024. doi: 10.1097/OR9.0000000000000024
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Article (Published version)
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ISSN of the journal2637-5974

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