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Scientific article
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Common Data Elements for Unruptured Intracranial Aneurysm and Subarachnoid Hemorrhage Clinical Research: Recommendations from the Working Group on Long-Term Therapies

ContributorsWong, George K. C.; Daly, Janis J.; Rhoney, Denise H.; Broderick, Joseph; Ogilvy, Christopher; Roos, Y. B.; Siddiqui, Adnan; Torner, James; Unruptured Intracranial Aneurysm and SAH CDE Project Investigators
Published inNeurocritical Care, vol. 30, no. S1, p. 79-86
Publication date2019
Abstract

Objectives: The goal for the long-term therapies (LTT) working group (WG) of the Unruptured Intracranial Aneurysm (UIA) and Subarachnoid Hemorrhage (SAH) common data elements (CDEs) was to develop a comprehensive set of CDEs, data definitions, case report forms, and guidelines for use in UIA and SAH LTT clinical research, as part of a new joint effort between the National Institute of Neurological Disorders and Stroke (NINDS) and the National Library of Medicine of the US National Institutes of Health. These UIA and SAH CDEs will join other neurological disease-specific CDEs already developed and available for use by research investigators.

Keywords
  • Cerebral aneurysm
  • Clinical research
  • Common data elements
  • Endpoint
  • Long-term therapy
  • Medication
  • Outcome
  • Rehabilitation
  • Subarachnoid Hemorrhage
Affiliation Not a UNIGE publication
Citation (ISO format)
WONG, George K. C. et al. Common Data Elements for Unruptured Intracranial Aneurysm and Subarachnoid Hemorrhage Clinical Research: Recommendations from the Working Group on Long-Term Therapies. In: Neurocritical Care, 2019, vol. 30, n° S1, p. 79–86. doi: 10.1007/s12028-019-00727-2
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Article (Published version)
Identifiers
ISSN of the journal1541-6933
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