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Ethics review of big data research: What should stay and what should be reformed?

ContributorsFerretti, Agata; Ienca, Marcello; Sheehan, Mark; Blasimme, Alessandro; Dove, Edward S.; Farsides, Bobbie; Friesen, Phoebe; Kahn, Jeff; Karlen, Walter; Kleist, Peter; Liao, S. Matthew; Nebeker, Camille; Samuel, Gabrielle; Shabani, Mahsa; Rivas Velarde, Minervaorcid; Vayena, Effy
Published inBMC medical ethics, vol. 22, no. 1
Publication date2021
Abstract

Ethics review is the process of assessing the ethics of research involving humans. The Ethics Review Committee (ERC) is the key oversight mechanism designated to ensure ethics review. Whether or not this governance mechanism is still fit for purpose in the data-driven research context remains a debated issue among research ethics experts.

Keywords
  • Big data
  • Biomedical research
  • Ethics
  • Ethics review
  • IRBs
  • RECs
  • Research ethics
Affiliation entities
Research groups
Funding
Citation (ISO format)
FERRETTI, Agata et al. Ethics review of big data research: What should stay and what should be reformed? In: BMC medical ethics, 2021, vol. 22, n° 1. doi: 10.1186/s12910-021-00616-4
Main files (1)
Article (Published version)
accessLevelPublic CC BY
Identifiers
Additional URL for this publicationhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC8085804/
Journal ISSN1472-6939
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98downloads

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