Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics

Bijlenga, Philippe Alexandre Pierre; Morita, Akio; Ko, Nerissa U; Mocco, J; Morel, Sandrine; Murayama, Yuichi; Wermer, Marieke J H; Brown, Robert D (Jr); Unruptured Cerebral Aneurysms and SAH CDE Project Investigators

doi:10.1007/s12028-019-00724-5

Scientific article

English

Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics

ContributorsBijlenga, Philippe Alexandre Pierre; Morita, Akio; Ko, Nerissa U; Mocco, J; Morel, Sandrine

; Murayama, Yuichi; Wermer, Marieke J H; Brown, Robert D (Jr); Unruptured Cerebral Aneurysms and SAH CDE Project Investigators

Published inNeurocritical Care, vol. 30, no. Suppl 1, p. 20-27

Publication date2019

Abstract

The National Institute of Neurological Disorders and Stroke (NINDS) Common Data Elements (CDEs) have been generated to standardize and define terms used by the scientific community. The widespread use of these CDEs promotes harmonized data collection in clinical research. The aim of the NINDS Unruptured Intracranial Aneurysms (UIA) and Subarachnoid Hemorrhage (SAH), and Subject Characteristics working group (WG) was to identify, define, and classify CDEs describing the characteristics of patients diagnosed with an UIA and SAH. Thus, "Participant/Subject characteristics" is a set of factors defining a population of selected individuals and allowing comparisons with a reference population and overtime.

Keywords

Alcohol Drinking
Biomedical Research
Common Data Elements
Comorbidity
Economic Status
Educational Status
Employment
Environmental Exposure
Ethnic Groups
Exercise
Humans
Intracranial Aneurysm
National Institute of Neurological Disorders and Stroke (U.S.)
National Library of Medicine (U.S.)
Reproductive History
Research Subjects
Smoking
Social Class
Subarachnoid Hemorrhage
United States

Affiliation entities

Faculté de médecine / Section de médecine clinique / Département des neurosciences cliniques

Research groups

Groupe Schaller Karl Lothard (neurochirurgie) (851)

Citation (ISO format)

BIJLENGA, Philippe Alexandre Pierre et al. Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics. In: Neurocritical Care, 2019, vol. 30, n° Suppl 1, p. 20–27. doi: 10.1007/s12028-019-00724-5

Article (Published version)

Identifiers

PID : unige:145625
DOI : 10.1007/s12028-019-00724-5
PMID : 31077079

Additional URL for this publicationhttps://link.springer.com/article/10.1007%2Fs12028-019-00724-5

Journal ISSN1541-6933

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Creation14/10/2020 19:52:00

First validation14/10/2020 19:52:00

Update15/03/2023 23:37:49

Status update15/03/2023 23:37:48

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Common Data Elements for Subarachnoid Hemorrhage and Unruptured Intracranial Aneurysms: Recommendations from the Working Group on Subject Characteristics

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