Breathlessness despite optimal pathophysiological treatment: on the relevance of being chronic

Article Article scientifique Article Breathlessness despite optimal pathophysiological treatment: on the relevance of being chronic eng 2017 author Morélot-Panzini Capucine author Adler Dan Elie 105451 author Aguilaniu Bernard author Allard Etienne author Bautin Nathalie author Beaumont Marc author Blanc François-Xavier author Chenivesse Cécile author Dangers Laurence author Delclaux Christophe author Demoule Alexandre author Devillier Philippe author Didier Alain author Georges Marjolaine 757714 author Housset Bruno 70974 author Janssens Jean-Paul 30742 author Laveneziana Pierantonio author Laviolette Louis author Muir Jean-François author Ninot Gregory author Perez Thierry author Peiffer Claudine author Schmidt Matthieu Stéphane 854312 author Similowski Thomas author Straus Christian author Taillé Camille author Van Den Broecke Sandra author Roche Nicolas 10.1183/13993003.01159-2017 28954773 0903-1936 Breathlessness” or “dyspnoea”. The discussion regarding this has already been described in detail in the Perspective piece [1]. The consensus relates to the internationally recognised name of the syndrome in English. The consensus was that the term should be that used by the lay public rather than healthcare professionals. Professionals will understand both, whereas the lay public may not understand “dyspnoea”, as one of the aims of a syndrome is to empower patients and their families to bring this concern to clinical notice. At least in English, “breathlessness” and “dyspnoea” are not interchangeable. For there to be a cultural and linguistic translation to languages other than English, it should be a term used by their lay public. “Optimal treatment”. After much discussion during the consensus process and workshop, the term “optimal” used in the Perspective referred to the available, tolerated and patient-accepted evidence-based intervention(s) targeting the primary pathophysiological processes of the underlying disease [1]. This is not sufficiently clear in the Perspective piece, although touched on in table S1 [1]. There is no intention that patients should be deprived of interventions targeted at the symptomatic management of their breathlessness because they do not tolerate, refuse or cannot access state of the art treatment for their medical condition. On the contrary, one of the aims of defining such a clinical syndrome is to draw attention to the available breathlessness-targeted treatments. These should be used systematically alongside disease-directed treatments both whilst disease treatments are being optimised and thereafter. This also mandates the review of how breathlessness is being managed regularly in order to gain the best possible outcomes for patients and their families. For people with chronic breathlessness syndrome, attention to the need for and use of breathlessness-targeted treatment will still be reviewed regularly with each clinical encounter. Chronic Disease Dyspnea Humans Pulmonary Disease Chronic Obstructive Dewey 616 56 Département de médecine 221 false 952 Groupe Gasche-Soccal Paola 958 European Respiratory Journal 50 3 287e01be-e0d6-4cd9-a63e-5c3badbd3e7e Article (Published version) Public BreathlessnessDespite.pdf 496405 application/pdf openAccess Faculté de médecine / Section de médecine clinique / Département de médecine

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Breathlessness despite optimal pathophysiological treatment: on the relevance of being chronic	European Respiratory Journal	2017	417	286

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