Patient engagement in clinical research : Geneva University Hospitals’ model

Article Article scientifique Article Patient engagement in clinical research : Geneva University Hospitals’ model eng 2021-10 author Corbiere Tourane 546147 author Elia Nadia 0000-0003-1787-9288 Geneva University Hospitals (HUG) Clinical Research Partnership Team (PARTNER REC) 87569 Département d'anesthésiologie, pharmacologie et soins intensifs (APSIC) author Carboni Sonia Geneva University Hospitals (HUG) Clinical Research Partnership Team (PARTNER REC) 558449 collaborator Agoritsas Thomas 0000-0002-6182-9969 516829 Département de médecine (DEMED) collaborator Coen Matteo 0000-0002-6156-1691 601519 Département de médecine (DEMED) collaborator Gayet-Ageron Angèle 0000-0002-6164-9693 668551 collaborator Csaki Huttner Angela 788122 Département de médecine (DEMED) collaborator Jobson Estelle collaborator Perret Aurélie collaborator Posfay Barbe Klara 39230 Département de Pédiatrie, Gynécologie et Obstétrique (PETRI) collaborator Roulin Marie-Jose 691559 collaborator Samer Caroline Flora 0000-0001-8178-0616 105661 Département d'anesthésiologie, pharmacologie et soins intensifs (APSIC) collaborator Touveneau Sylvie 526972 31-32 10.54920/scto.2021.rawatch.6.31 2813-2548 https://www.sctoplatforms.ch/en/publications/ra-watch/ra-watch-6-n-ppi/case-study-geneva-university-hospitalsr-ppi-model-128.html <p>While the concept of patients as partners in clinical research is becoming increasingly prevalent, there is still room for improvement. The development and validation of partnership models to engage patients in the design and governance of clinical research programmes are still in the early stages, and approaches that can ensure substantial and effective patient contributions to research are needed. In this article, we describe the patient partnership model being developed at Geneva University Hospitals (HUG) to engage patients and their caregivers in the design of clinical research studies and to encourage research groups in their efforts to involve patients within their teams.</p> Dewey 616 Dewey 617 Dewey 618 63 Département d'anesthésiologie, pharmacologie, soins intensifs et urgences 229 58 Département de pédiatrie, gynécologie et obstétrique 223 56 Département de médecine 221 false 515 Recherche en infectiologie pédiatrique et en pédiatrie générale 853 1280 Pharmaco-omiques et médecine de précision 1003 Regulatory affairs watch 3 6 dd7b0dfb-7c30-47f1-bd86-080293522587 Article (Published version) Public scto_issue_6_31.pdf 1158214 application/pdf 63ca3210a878319abec08c6cf648f4dde2e529bf174bda0d79ac0029672501c4 openAccess Faculté de médecine / Section de médecine clinique / Département d'anesthésiologie, pharmacologie, soins intensifs et urgences Faculté de médecine / Section de médecine clinique / Département de pédiatrie, gynécologie et obstétrique Faculté de médecine / Section de médecine clinique / Département de médecine

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Roulin, Marie-Jose