Residential placement and quality of life for adults with severe autism spectrum disorders and severe-to-profound intellectual disabilities

Article Article scientifique Article Residential placement and quality of life for adults with severe autism spectrum disorders and severe-to-profound intellectual disabilities eng 2017-10-02 author Galli-Carminati Giuliana Mariangela author Carminati Federico author Lehotkay Rachel 30017 author Lorincz Erika 639220 author Subirade Jacopit Viviane 670657 author Rondini Elisa author Bertelli Marco O. 187-205 10.1108/AIA-01-2017-0001 2056-3868 Purpose: The purpose of this paper is to evaluate the relationship between some main characteristics of different living arrangements and the quality of life (QoL) of their users with severe intellectual disability and low-functioning autism spectrum disorders. Design/methodology/approach: Study participants were assessed for ASD severity through the Childhood Autism Rating Scale or the Vineland Adaptive Behavior Scales (VABS): for behavioral problems with the aberrant behavior checklist (ABC); for perception of efficacy and satisfaction with care, through an adapted Visual Analogue Scale; and for QoL with the QoL inventory in residential environments (validated in French as Inventaire de la Qualité de Vie en Milieu Résidentiel). Because the goal was to define a “residential profile (RP),” the authors evaluated each participating residence with the Working Methods Scale and the questionnaire on residential parameters. Findings: The RP allowed for the classification of the residences into three clusters. The authors found no clear relationship between QoL and the RP clusters, but the authors found the RP clusters to be significantly correlated with ABC factors F1 (irritability, agitation, crying) and F2 (lethargy, social withdrawal), and VABS scores for living, socialization, and motor skills. Originality/value: RPs were more strongly correlated with ABC items and the ability to cope with everyday life than with QoL. The authors hypothesize that RP is correlated with both aberrant behavior and the autonomy of residents and that QoL remains relatively stable. Therefore, RP is correlated with the status of the residents; however, this appears not to be correlated with their QoL. Autism Intellectual disability Autonomy Quality of life Living arrangements Residential profile Dewey 616.89 60 Département de psychiatrie 225 false Advances in autism 3 4 58918ca6-97a0-4dff-b9cc-84e79a6dc19c Article (Published version) Private GalliCarminati_Lorincz_Residential_.pdf 1388402 application/pdf closedAccess Faculté de médecine / Section de médecine clinique / Département de psychiatrie

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Residential placement and quality of life for adults with severe autism spectrum disorders and severe-to-profound intellectual disabilities	Advances in autism			2017	165	0

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Lehotkay, Rachel