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Title

Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the WHO and the ESCEO

Authors
de Wit, Maarten
Cooper, Cyrus
Tugwell, Peter
Bere, Nathalie
Kirwan, John
Conaghan, Philip G.
Roberts, Charlotte
Aujoulat, Isabelle
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Published in Aging Clinical and Experimental Research. 2019, vol. 31, no. 7, p. 905-915
Abstract There is increasing emphasis on patient-centred research to support the development, approval and reimbursement of health interventions that best meet patients’ needs. However, there is currently little guidance on how meaningful patient engagement may be achieved. An expert working group, representing a wide range of stakeholders and disciplines, was convened by the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO) and the World Health Organization (WHO). Through a structured, collaborative process the group generated practical guidance to facilitate optimal patient engagement in clinical development and regulatory decisions. Patient engagement is a relational process. The principles outlined in this report were based on lessons learned through applied experience and on an extensive dialogue among the expert participants. This practice guidance forms a starting point from which tailoring of the approach to suit different chronic diseases may be undertaken.
Keywords Outcomes researchPatient engagementPatient preferenceRegulatory processTreatment guidelines
Identifiers
PMID: 30993659
Note Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the World Health Organization (WHO) and the European Society for Clinical and Economic Aspects of Osteoporosis, Osteoarthritis and Musculoskeletal Diseases (ESCEO)
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Research group Génétique des ostéoporoses (544)
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DE WIT, Maarten et al. Practical guidance for engaging patients in health research, treatment guidelines and regulatory processes: results of an expert group meeting organized by the WHO and the ESCEO. In: Aging Clinical and Experimental Research, 2019, vol. 31, n° 7, p. 905-915. doi: 10.1007/s40520-019-01193-8 https://archive-ouverte.unige.ch/unige:126112

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Deposited on : 2019-11-12

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