en
Scientific article
English

Information needs in parents of long-term childhood cancer survivors

Published inPediatric blood & cancer, vol. 62, no. 5, p. 859-866
Publication date2015
Abstract

Parents' knowledge about cancer, treatment, potential late effects and necessary follow-up is important to reassure themselves and motivate their child to participate in regular follow-up. We aimed to describe (i) parents' perception of information received during and after treatment; (ii) parents' current needs for information today, and to investigate; and (iii) associations between information needs and socio-demographic and clinical characteristics.

Keywords
  • Adolescent
  • Adult
  • Child
  • Child, Preschool
  • Decision Making
  • Delivery of Health Care
  • Female
  • Follow-Up Studies
  • Humans
  • Infant
  • Infant, Newborn
  • Information Services/standards/utilization
  • Male
  • Middle Aged
  • Needs Assessment
  • Neoplasms/prevention & control
  • Parents/education/psychology
  • Prognosis
  • Quality of Life
  • Registries
  • Survivors/psychology
Citation (ISO format)
VETSCH, Janine et al. Information needs in parents of long-term childhood cancer survivors. In: Pediatric blood & cancer, 2015, vol. 62, n° 5, p. 859–866. doi: 10.1002/pbc.25418
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Article (Published version)
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ISSN of the journal1545-5009
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Creation09/08/2015 2:11:00 PM
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